{"id":7848,"date":"2021-05-23T19:18:55","date_gmt":"2021-05-23T19:18:55","guid":{"rendered":"https:\/\/cathybiase.com\/?p=7848"},"modified":"2021-04-27T03:31:21","modified_gmt":"2021-04-27T03:31:21","slug":"this-week-on-the-health-hub-the-ilc-foundation-supporting-those-with-rare-chronic-pain-disorders-with-sandy-smeenk","status":"publish","type":"post","link":"https:\/\/cathybiase.com\/index.php\/2021\/05\/23\/this-week-on-the-health-hub-the-ilc-foundation-supporting-those-with-rare-chronic-pain-disorders-with-sandy-smeenk\/","title":{"rendered":"This Week On The Health Hub&#8230;The ILC Foundation &#038; Supporting Those With Rare Chronic Pain Disorders with Sandy Smeenk"},"content":{"rendered":"<div dir=\"ltr\">\r\n<div dir=\"auto\">\r\n<div dir=\"ltr\">\r\n<div dir=\"ltr\">\r\n<div class=\"x_x_WordSection1\"><span style=\"color: #386c9a;\">Sandy Smeenk is the Co-Founder &amp; Executive Director of\u00a0<em>The ILC Charitable Foundation (\u201cThe ILC\u201d)<\/em>.\u00a0\u00a0The \u201cILC\u201d is the abbreviation for\u00a0<i>\u201cImproving the Lives of Children\u201d <\/i>touching children of all ages and throughout adult-life.\u00a0 Sandy has worked with and led teams of people on the development of programs to improve the lives of individuals living with Ehlers Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), related disorders and Chronic Pain.\u00a0\u00a0Sandy is a member of the Patient-Engagement Committee with the\u00a0<em>CIHR<\/em>\u00a0funded\u00a0<em>Chronic Pain Network, is \u00a0<\/em>a member of\u00a0the\u00a0<em>Chronic Pain Care Forum<\/em>\u00a0whose aim is to support the development of a National Pain Strategy and is recognized by\u00a0<em>Patient Commando<\/em>\u00a0as a\u00a0<a style=\"color: #386c9a;\" href=\"http:\/\/patientcommando.com\/canadian-women-changing-healthcare\/2011\/08\/sandy-smeenk\/\"><i>Canadian Women Changing Healthcare<\/i><\/a>.<\/span><hr \/><strong><span style=\"color: #63ad89;\">Learning point:<\/span><\/strong>\r\n<ul>\r\n<li><span style=\"color: #63ad89;\">Who does the <em>The ILC Charitable Foundation <\/em>serve?<\/span><\/li>\r\n<li><span style=\"color: #63ad89;\">Why are people with Ehlers Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), related disorders and Chronic Pain so underserved?<\/span><\/li>\r\n<li><span style=\"color: #63ad89;\">What are some foundational programs offered by the ILC?<\/span><\/li>\r\n<\/ul>\r\n<hr \/><strong><span style=\"color: #386c9a;\">Social Media:<\/span><\/strong><\/div>\r\n<ul>\r\n<li style=\"list-style-type: none;\">\r\n<ul>\r\n<li><span style=\"color: #386c9a;\"><a style=\"color: #386c9a;\" href=\"http:\/\/www.theilcfoundation.org\/\">www.TheILCFoundation.org<\/a><\/span><\/li>\r\n<li><span style=\"color: #386c9a;\"><a style=\"color: #386c9a;\" href=\"https:\/\/twitter.com\/ILC_Foundation\">https:\/\/twitter.com\/ILC_Foundation<\/a><\/span><\/li>\r\n<li><span style=\"color: #386c9a;\"><a style=\"color: #386c9a;\" href=\"https:\/\/www.facebook.com\/TheILCFoundation?fref=ts\">https:\/\/www.facebook.com\/TheILCFoundation?fref=ts<\/a><\/span><\/li>\r\n<li><span style=\"color: #386c9a;\"><a style=\"color: #386c9a;\" href=\"https:\/\/www.instagram.com\/theilcfoundation\/\">https:\/\/www.instagram.com\/theilcfoundation\/<\/a><\/span><\/li>\r\n<li><span style=\"color: #386c9a;\"><a style=\"color: #386c9a;\" href=\"https:\/\/www.linkedin.com\/company\/2047512\/admin\/\">https:\/\/www.linkedin.com\/company\/2047512\/admin\/<\/a><\/span><\/li>\r\n<li><span style=\"color: #386c9a;\"><a style=\"color: #386c9a;\" href=\"https:\/\/www.youtube.com\/channel\/UCsWpRQ2sCHKEC9SsjH196AA\/videos\">https:\/\/www.youtube.com\/channel\/UCsWpRQ2sCHKEC9SsjH196AA\/videos<\/a><\/span><\/li>\r\n<\/ul>\r\n<\/li>\r\n<\/ul>\r\n<\/div>\r\n<\/div>\r\n<\/div>\r\n<\/div>\r\n<hr \/>\r\n<p>&nbsp;<\/p>\r\n<p class=\"p1\"><!-- \/wp:post-content -->\r\n\r\n<!-- wp:heading {\"level\":4} --><\/p>\r\n<h4><span style=\"color: #386c98;\"><strong><em>Listen live or catch the podcast on <a style=\"color: #386c98;\" href=\"https:\/\/itunes.apple.com\/ca\/podcast\/health-and-wellness\/id1294977077\">iTunes<\/a> and <a style=\"color: #386c98;\" href=\"https:\/\/soundcloud.com\/thehealthhub\">SoundCloud<\/a>!<\/em><\/strong><\/span><\/h4>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:image {\"id\":3319,\"linkDestination\":\"custom\"} --><\/p>\r\n<figure class=\"wp-block-image\"><a href=\"http:\/\/www.cathybiase.com\/thehealthhub\/greenbannerlargest\/\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1000\" height=\"450\" class=\"wp-image-3319\" src=\"http:\/\/cathybiase.com\/wp-content\/uploads\/2019\/12\/greenbannerlargest.png\" alt=\"\" \/><\/a><\/figure>\r\n<p class=\"p1\"><!-- \/wp:image -->\r\n\r\n<!-- wp:heading {\"level\":5} --><\/p>\r\n<h5><em>Every Tuesday\u00a0from 11am -12pm I host\u00a0The Health Hub, an interactive, forward thinking talk show on\u00a0<strong><a href=\"http:\/\/www.radiomaria.ca\" target=\"_blank\" rel=\"noreferrer noopener\">Radio Maria\u00a0Canada<\/a><\/strong>. \u00a0 Call, tweet\u00a0or email\u00a0your questions as together we explore health issues that are relevant to you from new and innovative points of view<\/em>.<\/h5>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:separator --><\/p>\r\n<hr class=\"wp-block-separator\" \/>\r\n<p class=\"p1\"><!-- \/wp:separator -->\r\n\r\n<!-- wp:heading {\"level\":3} --><\/p>\r\n<h3><span style=\"color: #386c98;\"><strong>TheHealthHub is now on iTunes!<\/strong><\/span><\/h3>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:heading {\"level\":3} --><\/p>\r\n<h3><em><a href=\"https:\/\/itunes.apple.com\/ca\/podcast\/health-and-wellness\/id1294977077\">Subscribe<\/a> <\/em><strong>and don&#8217;t miss a single episode!<\/strong><\/h3>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:separator --><\/p>\r\n<hr class=\"wp-block-separator\" \/>\r\n<p class=\"p1\"><!-- \/wp:separator -->\r\n\r\n<!-- wp:heading {\"level\":3} --><\/p>\r\n<h3><span style=\"color: #386c98;\"><strong>Follow us on Social Media<\/strong><\/span><\/h3>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:paragraph {\"customFontSize\":19} --><\/p>\r\n<p style=\"font-size: 19px;\">We are @thehealthhubrmc on <a href=\"https:\/\/www.instagram.com\/thehealthhubrmc\/\">Instagram<\/a>, <a href=\"https:\/\/twitter.com\/TheHealthHubrmc\">Twitter<\/a> and <a href=\"https:\/\/www.facebook.com\/TheHealthHubrmc\/\">Facebook<\/a><\/p>\r\n<p class=\"p1\"><!-- \/wp:paragraph -->\r\n\r\n<!-- wp:separator --><\/p>\r\n<hr class=\"wp-block-separator\" \/>\r\n<p class=\"p1\"><!-- \/wp:separator -->\r\n\r\n<!-- wp:heading {\"level\":3} --><\/p>\r\n<h3><span style=\"color: #386c98;\"><strong>How To Listen Live<\/strong><\/span><\/h3>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:paragraph --><\/p>\r\n<p><strong>Visit our website and learn how to listen live to our show each week.<\/strong> <a href=\"http:\/\/www.radiomaria.ca\/how-to-listen\" target=\"_blank\" rel=\"noreferrer noopener\">http:\/\/www.radiomaria.ca\/how-to-listen<\/a><\/p>\r\n<p class=\"p1\"><!-- \/wp:paragraph -->\r\n\r\n<!-- wp:heading {\"level\":3} --><\/p>\r\n<h3><span style=\"color: #386c98;\"><strong>Let us know!<\/strong><\/span><\/h3>\r\n<p class=\"p1\"><!-- \/wp:heading -->\r\n\r\n<!-- wp:separator --><\/p>\r\n<hr class=\"wp-block-separator\" \/>\r\n<p class=\"p1\"><!-- \/wp:separator -->\r\n\r\n<!-- wp:paragraph --><\/p>\r\n<p>If you have a health topic that you would like us to discuss or are a health care specialist who wants to be a guest on our show let us know!<\/p>\r\n<p class=\"p1\"><!-- \/wp:paragraph -->\r\n\r\n<!-- wp:paragraph --><\/p>\r\n<p>Here is our email. \u00a0We would love to hear from you! <a href=\"mailto:thh@radiomaria.ca\"><strong>thh@radiomaria.ca<\/strong><\/a><\/p>\r\n<p class=\"p1\"><!-- \/wp:paragraph -->\r\n\r\n<!-- wp:heading {\"level\":1} --><\/p>\r\n<p class=\"p1\"><!-- \/wp:heading --><\/p>\r\n<!-- \/wp:paragraph -->\r\n\r\n<!-- wp:separator -->\r\n<p>&nbsp;<\/p>\r\n<!-- \/wp:heading -->\r\n\r\n<!-- wp:image {\"id\":3319,\"linkDestination\":\"custom\"} --><!-- \/wp:paragraph -->\r\n\r\n<!-- wp:heading {\"level\":1} -->\r\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Sandy Smeenk is the Co-Founder &amp; Executive Director of\u00a0The ILC Charitable Foundation (\u201cThe ILC\u201d).\u00a0\u00a0The \u201cILC\u201d is the abbreviation for\u00a0\u201cImproving the Lives of Children\u201d touching children of all ages and throughout &hellip; <a href=\"https:\/\/cathybiase.com\/index.php\/2021\/05\/23\/this-week-on-the-health-hub-the-ilc-foundation-supporting-those-with-rare-chronic-pain-disorders-with-sandy-smeenk\/\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">This Week On The Health Hub&#8230;The ILC Foundation &#038; Supporting Those With Rare Chronic Pain Disorders with Sandy Smeenk<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":7845,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[26,30,31,207],"tags":[784,822,356,223,224],"class_list":["post-7848","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","category-media","category-podcasts","category-health-hub","tag-chronicpain","tag-ilc","tag-podcast","tag-radio","tag-talkshow"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>This Week On The Health Hub...The ILC Foundation 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